Les Halpin 1957-2013
We are saddened to announce that Les Halpin died this weekend, aged 56.
Les was a remarkable and visionary individual whose Access to Medicine campaign, seeking fundamental change in patients’ rights to access to drugs for rare and life threatening illnesses, will be his legacy.
Les founded the campaign after being diagnosed with Motor Neurone Disease in May 2011. In a relatively short time, the Campaign has gained significant momentum and it was Les’ clear wish that it continues its progress. His vision was that one day, sooner rather than later, the Halpin Protocol will be reality, enabling patients to access medicines in the earlier stages of development, under the supervision of their consultant, that may improve or prolong their lives while providing invaluable trial data for future generations.
His wife Claire said today: “Les knew that he would not benefit from anything the campaign could change in his lifetime. But he did know that he could put what time and energy he had left into an initiative that could be life changing for future generations.”
Les’ MP, Geoffrey Clifton-Brown, who was one of the earliest supporters of the Campaign added: “When I first met Les he knew he was going to die. His instructions to me and fellow campaigners the last time I saw him was that the campaign should continue – he was very clear to the end about what he had set out to achieve and how we are going to make that happen. We are all committed to seeing the Halpin Protocol implemented so that people who are suffering from illnesses similar to Les will have a better chance in the future than he did because of lack of development into suitable drugs.”
Please add any messages of condolence to the comment box below.
If you would like to donate to the campaign, or send us a message, please contact firstname.lastname@example.org or write to The Access to Medicine Campaign, 34 Smith Square, London, SW1P 3HL.
To show your ongoing support, the Campaign would also urge you to sign the online petition at http://epetitions.direct.gov.uk/petitions/45928
For further press information please contact Karen White on 0117 9073400 or 07787 148393 or James Hargrave 0203 267 0074 or 07900 904 707