Empower: Access to Medicine in the Sunday Times
Lois Rogers, a Sunday Times journalist who chaired Empower’s Roundtable debate in September, interviewed Les Halpin about the campaign.
The piece looks at Les’ professional background and his diagnosis with Motor Neurone Disease, it also describes his dismay at discovering the “comparatively little research being carried out on the fatal degenerative condition.”
The Sunday Times also describes how Les is “one of an estimated 3.5m people in Britain suffering from a variety of “rare” diseases that are considered uneconomic for research efforts by major drug companies.”
On the subject of pharmaceutical companies’ reticence to invest in rare disease, Les says:
“Pharmaceutical companies are not interested in so-called rare diseases because the costs of developing new treatments are just too high . . . A lot of academics know about this and are concerned, but nothing’s being done.
“We need people to get together. I’ve had luck and opportunities in my life. Making this happen is something I can give back.”
The article also directly quotes Geoffrey Clifton-Brown MP from his Westminster Hall debate on 23rd January.
“Opening up the discussion around the lack of availability of effective drugs for rare and life-threatening diseases is a vital first step on the path towards accelerating new innovative drugs”
You can read the article in full here. Please note the Sunday Times is subscription only.